In response to the President of the Russian Interregional public organization "Inter-regional support center for patients with aniridia " Iris "," Gening Galina in the Ministry of Health and Medical Sciences to pay attention for a congenital rare disease Aniridia. Gening Galina asked goverement to help and support patients with aniridia bay organizing for them free genetic testing. Ministry of Health of the Russian Academy of Medical Sciences answered , that the question of conducting a survey by the budget under consideration.